Author: Jamie Nicholson (Jamie Nicholson)

My name is Alanna and I'm 3 years old. I was diagnosed with FOP last year. I love to play with my toys and play with my brother and my cousins. I am happiest when I am playing in my sandpit in the sunshine. FOP has already restricted some of my movement and has made it harder for me to learn to walk, but I have a walker and I am becoming stronger and more every day.

Hi, my name is Adam O Shaughnessy. I live in Limerick in the Republic of Ireland. I love to play online with my friends. I love going to school when I can. I am doing my junior cert in June and I hope I will pass it"

My name is Ellis and I am 10 years old. I am cheeky with an amazing sense of humour and a smile that means I get away with most things! I like love re-enacting my favourite movie Star Wars by having light saber fights with my Dad - I am always Luke Skywalker though!

Hi, my name is Charlie. I adore Marvel, DC and building Lego.  My hero is Spiderman and earlier this year I was lucky enough to meet the actor Tom Holland. I have a really annoying older sister and an irritating younger cousin! I love them both despite how much they drive me crazy – maybe...

Until aged 5, I was ‘healthy’ and out riding my BMX bike with my friends. My parents noticed my glands were swollen and being young and naïve I thought it was because I’d fallen over earlier that day. My parents took me to our GP the same day, upon a brief examination he told my parents he suspected I had contracted T.B, and referred us to a children’s hospital not far from where we lived in the South Coast at the time.

Isla is a bright, happy five-year-old with a smile that can light up any room! Isla loves flamingos, handbags, watching Gym Stars, playing with her siblings and going to the park to ride her adapted trike. She enjoys playing on the beach and splashing around in the pool. Anyone who knows her, loves her determination, her courage and her spirit.

Hello, my name is Jamie. I love watching Laurel and Hardy films because they are so funny. I also love Harry Potter and Toy Story. I enjoy being around nature and try to take pictures of the things I see around me. I like listening to music especially REM and The Beatles, as they are my favourite. I also like reading books - anything from Roald Dahl, David Walliams, and Tom Fletcher.

My name is Millie, I am 8, and I live in Framlingham, Suffolk. I have a big brother Ethan and a little sister Esther who I love to play with. I like going to school and playing with my friends, I just have to be more careful and try not to fall or bump myself. Everyone thinks I am a smiley little girl and I am determined to stay that way. I just want to play like all other children.