Save the Date!

The 6th FOP Friends Conference and Family Gathering will be held at the

Radisson Blu, Manchester Airport Hotel, England.

15th – 17th May 2026

Conference and Family Gathering 2024

Enjoy some of the highlights from our Family Weekend…

Our 2024 Conference weekend was jam-packed with families, friends, information, love, tears, laughter and hope.

We are thankful to the expert medical professionals who attending, giving up their weekend and family time to spend time with our families.  We are truly blessed to have such caring healthcare professionals taking care of us.

However, the event would not be the success it is – year after year – without our amazing families who attend with all their hearts.  They share stories and experiences, and offer support and friendship to those in need.  Thank you for being a part of the community we all need as we navigate the challenges of living with FOP and POH.  Our lives are all the richer for having each other.

If you missed the event and would like to see the programme and read the articles, you can view it here: Delegate Brochure

To receive a pdf copy by email, please contact us.